Researchers Request

Listed below are the current objectives and eligibility:

Request to use
Dystonia International Patient Registry

Obtain Access


To obtain access to the Registry any research proposal must provide the following documentation that will be reviewed by the DIPR Scientific Advisory Committee:

One-page summary of the study proposal including the title of the study, major objectives and hypothesis, specific aims, number of participants, inclusion and exclusion criteria, and experimental and analytical methods

  • IRB approval from the Investigator’s Institution
  • Informed consent, if applicable
  • NIH-style biosketch including the description of existing and/or anticipated financial support for the project

The DIPR Scientific Advisory Committee will review the proposal and, if approved, will contact the Investigator with further details.

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