Researchers Request

Listed below are the current objectives and eligibility:

Request to use
Dystonia International Patient Registry

[crmperks-forms id=4]

Obtain Access


To obtain access to the Registry any research proposal must provide the following documentation that will be reviewed by the DIPR Scientific Advisory Committee:

One-page summary of the study proposal including the title of the study, major objectives and hypothesis, specific aims, number of participants, inclusion and exclusion criteria, and experimental and analytical methods

  • IRB approval from the Investigator’s Institution
  • Informed consent, if applicable
  • NIH-style biosketch including the description of existing and/or anticipated financial support for the project

The DIPR Scientific Advisory Committee will review the proposal and, if approved, will contact the Investigator with further details.

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